S.C.I.L.S.
Enhance & Empower
 

 

 

Sunshine Coast Independent Living Service Inc.    

  

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Although the following is accurate, the name is fictitious to protect the persons true identity.

 

For several years I used to pick Naomi up from home and transport her to the support agency for day activities. Naomi was profoundly disabled, suffering from Wretts Syndrome; she had minimal bodily movement and spent all day in a wheel chair with transfers to car and to bed each day for a rest; she was completely dependent for all personal needs and lunch could take more than one hour, spoon feeding a small pot of yoghurt. Naomi was of very slight build, about 120cm tall and only weighing about 30 kg. Naomi also suffered from Epileptic seizures and at times could have several petit mal seizures in one day, and also suffered extreme bouts of painful constipation as well as the pain experienced by her period complications. Although Naomi could not move and could not speak it was very clear that she understood everything she heard, in fact there was uncertainty about her intellectual ability as a definitive assessment had never been completed. But despite her profound disability Naomi was very much an individual and could clearly express her individuality, one way of expressing her individuality was to refuse to eat, this could last for several days at a time; Naomi was adequately blessed with ample amounts of will power. Naomi loved to visit the trendy ladies clothing shops and do all the girly things with make-up and perfume etc, she also loved to visit the library and enjoyed having a good story read to her.  

 

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